SWISS RENAL REGISTRY AND QUALITY ASSESSMENT PROGRAM (srrqap)
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The Swiss renal registry and quality assessment program (srrqap) was established in 2006 by the Swiss Society of Nephrology (SGN). All chronic dialysis patients in Switzerland are captured and characterized in the dialysis registry. The registry not only reflects the demographic situation and the development of the Swiss dialysis population, but also allows the assessment of important epidemiological and health policy issues prospectively. Thereby, it contributes significantly to the medical care of these patients and to gain new insights into disease mechanisms in chronic renal failure. Quality control and continuous quality improvement is another purpose, which is achieved mainly by the comparison of individual centers with Swiss benchmarks and with other countries represented in the ERA registry. Thus, the srrqap publishes the annual figures, puts together benchmark analyses between individual centers, and submits a minimum data set to the ERA for further comparisons.
The following parameters are assessed in the dialysis registry:
- Basic data: Age, gender, cause of renal failure, ethnicity, nationality, start date of renal replacement therapy, modality of renal replacement therapy, death date, death cause, kidney transplantation, type of kidney transplantation.
- Clinical indicators: Height, weight, amputations, actual dialysis modality, actual access, dialysis duration, blood pressure, hypertension yes/no, antihypertensive yes/no, hemoglobin, ferritin, calcium, phosphate, parathormone, iron- and EPO substitution yes/no, Kt/V.
- Comorbidities (yes/no): aids, chronic pulmonary disease, dementia, diabetes, hemiplegia, hepatitis B, hepatitis C, cardiac insufficiency, HIV, myocardial infarction, cardiomyopathy, collagenosis, connective tissue disease, coronary heart disease, liver disease, leukemia, lymphoma, tumor disease, metastasizing solid tumor, peripheral vascular disease, ulcer disease, cerebrovascular disease.
INTERVIEWS
Das schweizerische Dialyseregister swiss renal registry and quality assessment program (srrqap) wurde 2006 von der Schweizerischen Gesellschaft für Nephrologie (SGN) gegründet. Alle chronischen Dialysepatienten der Schweiz werden im Dialyseregister erfasst und dokumentiert. Das Dialyseregister vermittelt nicht nur einen guten Eindruck über die demographische Situation und Entwicklung der Schweizer Dialysepopulation, sondern ermöglicht mittel- bis langfristig auch die Beantwortung wichtiger epidemiologischer und gesundheitspolitischer Fragen. Dadurch leistet es einen relevanten Beitrag zur medizinischen Versorgung dieser Patienten und zur Gewinnung neuer Erkenntnisse über Krankheitsmechanismen bei chronischem Nierenversagen. Ein weiteres Ziel ist die Qualitätskontrolle und kontinuierliche Qualitätsverbesserung, welche vor allem durch den Vergleich zwischen den einzelnen Zentren und zwischen der Schweiz und den anderen Ländern, welche im ERA Registry zusammengeschlossen sind, erreicht wird. Aus diesem Grund veröffentlicht das srrqap jährlich die gesammelten Zahlen, stellt Benchmark-Vergleiche zwischen den einzelnen Zentren zusammen und übermittelt einen minimalen Datensatz an das ERA für weitere Vergleiche.
Folgende Parameter werden im Dialyseregister erfasst:
- Basisdaten: Geburtsdatum, Geschlecht, renale Grunderkrankung, Ethnizität, Nationalität, Beginn der Nierenersatztherapie, Art und Wechsel der Nierenersatztherapie, Todesdatum, Todesursache, Transplantation, Art der Transplantation.
- Klinische Indikatoren: Grösse, Gewicht, Amputationen, aktuelle Dialysemodalität, aktueller Gefässzugang, Dialysedauer, Blutdruck, Hypertension ja/nein, Antihypertensiva ja/nein, Hämoglobin, Ferritin, Calcium, Phosphat, PTH, Eisen- und EPO-Substitution ja/nein, Kt/V.
- Komorbiditäten (ja/nein): AIDS, chronische Lungenerkrankung, Demenz, Diabetes, Hemiplegie, Hepatitis B, Hepatitis C, Herzinsuffizienz, HIV, Myokardinfarkt, Kardiomyopathie, Kollagenose, konnektive Bindegewebserkrankung, koronare Herzkrankheit, Lebererkrankung, Leukämie, Lymphom, Tumorerkrankung, metastasierender solider Tumor, periphere vaskuläre Verschlusskrankheit, Ulkuskrankheit, zerebrovaskuläre Erkrankung.
ARTIKEL
The Swiss Renal Registry and Quality Assessment Program (SRRQAP) was established in 2006 by the Swiss Society of Nephrology (SSN-SGN). This registry collects data from all chronic dialysis patients in Switzerland, offering a comprehensive overview of demographic trends and facilitating the analysis of key epidemiological and health policy issues. The dialysis data, along with the data provided by the transplant centers and the STCS, will be submitted to the ERA registry on a yearly basis. The ERA registry publishes annual reports on chronic kidney failure patients.
A primary focus of the SRRQAP are the control and continuous improvement of quality. This is achieved by comparing individual dialysis centers with national benchmarks and international data from the ERA registry. The SRRQAP shares findings and analyses at the annual SSN-SGN congress, conducts benchmarking between centers, and submits a minimal data set to the ERA registry for international comparisons.
Parameters assessed in the dialysis registry:
- Basic data: Age, gender, cause of kidney failure, ethnicity, nationality, start date of renal replacement therapy, type of renal replacement therapy, date and cause of death, kidney transplantation (type and date), date of graft failure, change of dialysis modality, recovery of renal function, change of dialysis center, stopping treatment (without recovery), loss to follow-up.
- Clinical indicators: Height, weight, amputations, current dialysis modality, current vascular access, dialysis duration, blood pressure, hypertension (yes/no), hemoglobin, ferritin, calcium, phosphate, parathyroid hormone, iron and erythropoietin substitution (yes/no), Kt/V, residual kidney function.
- Comorbidities (yes/no): AIDS, chronic lung disease, dementia, diabetes, hemiplegia, hepatitis B, hepatitis C, heart failure, HIV, myocardial infarction, cardiomyopathy, collagenosis, connective tissue diseases, coronary artery disease, liver disease, leukemia, lymphoma, cancer, metastasizing solid tumor, peripheral vascular disease, ulcer disease, cerebrovascular disease, mental health disorders.