| Uyen Huynh-Do, Bern | President Update: 11.12.2024 |
| Paloma Parvex, Genève | Vice-President |
| Olivier Bonny, Fribourg - Lausanne | Secretary |
| Ruxandra Bachmann-Gagescu, Zürich | Member, representative Genetics |
| Sophie de Seigneux, Genève | Member |
| Daniel Fuster, Bern | Member |
Please note the three virtual meetings in 2025 during which you can present and discuss cases with a panel of Swiss experts.
March 11, 2025, 4:00 - 5:30 pm: case discussion - general rare and inherited kidney disorders (Jetzt an der Besprechung teilnehmen)
June 17, 2025, 4:00 - 5:30 pm: case discussion of complement disorders (Jetzt an der Besprechung teilnehmen)
October 10, 2025, 4:00 - 5:30 pm: case discussion - general rare and inherited kidney disorders (Jetzt an der Besprechung teilnehmen)
The RARE-KIDNEY network was recently endorsed and recognized by the KOSEK at the national level! Find more information about the networt RARE-Kidney here.
Please note that in case of a need for an urgent discussion on the management of complement-mediated kidney diseases, you can send an email any time to Pr Fadi Fakhouri (fadi.fakhouri@chuv.ch) and a virtual meeting will be rapidly arranged for a collegial discussion of the case with the experts able to attend. This may specially apply in case of refusal of an eculizumab treatment or unclear indication as stated in the limitatio of the drug.
| Daniel Teta, Sion & Lausanne | President |
| Bruno Vogt, Bern | Vice-President |
| Spyridon Arampatzis, Bern | Secretary |
| Marco Bonani, Zürich | Member |
| Christian Bucher, St. Gallen | Member |
| Lorella Ciutto, Sion | Member |
| Thomas Ernandez, Genève | Member |
| Argyrios Georgalis, Chur | Member |
| Karine Hadaya, Chêne-Bougeries | Member |
| Matthias Moor, Bern | Member |
Update: 11.12.2024
| Harald Seeger, Baden | Co-President |
| Anne Zanchi-Delacrétaz, Lausanne | Co-President |
| Stefan Bilz, St Gallen | Member |
| Cecilia Czerlau, Bern | Member |
| Sophie de Seigneux, Genève | Member |
| Andreas Jehle, Luzern | Member |
| Faiza Lamine, Renna | Member |
| Bruno Vogt, Bern |
Member |
Update: 11.12.2024
| Belén Ponte, Genève | President |
| Daniel Ackermann, Bern | Member |
| Norbert Arn, St. Gallen | Member |
| Katarina Benackova, Bern | Member |
| Marco Bonani, Zürich | Member |
| Florian Buchkremer, Aarau | Member |
| Argyrios Georgalis, Chur | Member |
| Markus Mohaupt, Bern | Member |
| Örs Saithy, Schaffhausen | Member |
| Joscha von Rappard, Luzern | Member |
Update: 11.12.2024
| Aurelia Schnyder , St. Gallen | President |
| Luca Gabutti , Bellinzona | Member |
| Lukas Gerber, Aarau | Member |
| Rebecca Guidotti , Zürich | Member – representative srrqap |
| Ute Helt , Zürich | Member – representative nurses |
| Thomas Hunziker, Affoltern a.A | Member – representative patients |
| Valérie Jotterand-Drepper, Genève | Member |
| Belén Ponte , Genève | Member |
| Hans-Ruedi Räz, Baden | Member |
| Andrea Schäfer, Praz/Vully | Member – representative patients |
| Ann-Kathrin Schwarzkopf , Bern | Member |
| Claudia Studer , Zürich | Member – representative nurses |
| Caroline Wehmeier, Basel | Member |
Update: 11.12.2024
| Specialty | Function |
| Nephrologists | |
| Stephan Segerer, Aarau | President (08.12.2023 – 05.12.2025) |
| Melanie Ackermann, Neuchatel | Member |
| Spiros Arampatzis, Bern | Member |
| Alf Corsenca, Uster | Member |
| Davide Giunzioni, Lugano | Member |
| Annette Helmuth, Zurich | Member |
| Patricia Mehier, Riviera | Member |
| Menno Pruijm, Lausanne | Member |
| Elena Rho, Zürich | Member |
| Aurelia Schnyder, St. Gallen | Member |
| Curzio Solca, Lugano | Member |
| Patrick Saudan, Genève | Member |
| Nurses | |
| Caroline Bello, Rennaz | Member |
| Marilyne Chiffaut, Rennaz | Member |
| Jean-Sébatien Gabet, Lausanne | Member |
| Quentin Laurent, Lausanne | Member |
| Mareen Novakowski | Member |
| Clotilde Ponsar, Genève | Member |
| Experts | |
| Clementine Bouzat, Gambro | Member |
| Florian Breider, Lausanne | Member |
| Iklim Deniz, Gambro | Member |
| Yannick Ettwiller, Theramed | Member |
| Thomas Gebhart, Fresenius | Member |
| Oliver Martin Du Pan, Genève | Member |
| Patients | |
| Khedider Trabelsi, Lausanne | Member |
Update: 11.12.2024